When Camron’s father was told that they finally figured out what his son had, he was relieved. Soon after they told him that there was nothing they could do about it because his particular version of Limb Girdle Muscular Dystrophy (Type 2S) was not funded for research.
Like any parent would be he was heart broken for his son. Determined to do something he set out to change that. The first step was to get the Muscular Dystrophy Association to recognize it on their site (Which thanks to all of you they have on mda.org!)
The next step is creating a foundation that can accept donations that can go directly to researching Camrons specific type of LGMD, which will also help the field overall.
To do that we need to create a corporation and then file for non-profit status. As it turns out, this costs money.
We are trying to raise 2k first to help get the corporation started and the website not hosted on a friends account. Every dollar helps! Please consider a recurring donation to help with hosting and legal costs if you can.