8 months 13 hours ago
Camronscure foundation is looking for donations for a raffle table at our event in September. Gift cards, baskets, tickets to events..anything!! Thanks in advance!!
8 months 1 day ago
We have a bunch of Camronscure t shirts in different sizes left over! If anyone wants a shirt let me know!! I get compliments on it all the time!! Also, we got some hoodies. They are heavy and look awesome! I can order more if anyone wants one. They are 40 dollars but well worth it!
Wow! I have had the amazing experience of attending the speak foundations annual conference on neuromuscular diseases. I have connected with amazing people and learned a new wealth of information regarding LGMD. They even called me up so I could introduce Camroncure! #camronscureinatl #thespeakfoundation #formybaby
8 months 2 weeks ago
Papa tony representing #Camronscure on Mount Washington!! Second order of Camronscure shirts being pick up tomorrow!! I’ll be contacting people to drop them off this week!
We are pleased to announce we have officially been granted full tax exemption status by the IRS. We are now officially a 509(A)2 tax exempt charity. And all donations made going forward and in the past are tax deductible. Thank you all for your support and stay tuned for upcoming events!!!
Many people have asked questions about Camronscure so here goes...
Camronscure is a non profit foundation created to support the research of Limb Girdle Muscular Dystrophy, specifically type 2s. We are focusing on promoting awareness of this disease and raising money for research and treatment. When we raise a significant amount of money, we are going to present a check to a research company. Rest assured that your donation money is going to a good place because before we cut a check, we will thoroughly research the company. There is a ton of Limb Girdle research on the horizon and I feel there could be a treatment in my son's lifetime. If you would like to donate to camronscure, you can go to camronscure.com